Jax is nearly four years old and will soon be starting mainstream school. We had a prenatal diagnosis by amnio at 17 weeks. We endured a lot of outdated views from medical professionals and now advocate to change these perceptions.

Jax talks but is also very good at British makaton sign language. He is cheeky, charming and has the most infectious smile and personality. He gathers a crowd wherever he goes. Jax has made our lives so much better. He changes people’s perceptions everyday and we are so proud to call him our son.