Hope

Hope is 2 years old and lives in Shelby Township, Michigan. She has a big brother, Johnathan who is 4 and is looking forward to becoming a big sister this fall. Hope likes unicorns, purple and pink, sparkly shoes, and My Little Pony. She is our sassy, sweet, cuddle bug. But more than anything, Hope is a warrior.

In addition to Down Syndrome, Hope was born with Complex Congenital Heart Disease including and AVSD and a coarctation of the aorta. Complications from her heart defect caused her lungs and airway not to develop correctly leaving her trach and vent dependent. She also has Cerebral Palsy, dysphagia, mild vision and hearing issues, and a gtube.

Our sweet girl has spent half her life in the hospital, many days critically ill. Now, she spends half her days in therapy. But she is weaning off the vent, on track to be trach-free by summer, starting to talk and eat, and taking her first steps with the help of a gait trainer.

Hope has taught us so much about faith, patience, and resilience. And she continues to prove every day that we can’t ever count her out.

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It is with a heavy heart that we announce the closure of the Nothing Down organization. After much careful thought and consideration, we have made the difficult decision to bring this chapter to a close.
Since our founding in 2016, we have achieved so much together—making a meaningful impact in the Down syndrome community and connecting with incredible individuals along the way. We are immensely proud of the work we've done and deeply grateful for the opportunity to have been part of such a positive and supportive network.
We would like to extend our sincerest gratitude to every donor, participant, volunteer, and supporter who helped bring Nothing Down to life. Your contributions have been invaluable, and none of our accomplishments would have been possible without you.
Though our organization is closing, Nothing Down's Facebook page will remain where new and expectant parents can find hope and inspiration from our past projects and awareness content. We are so grateful for all the wonderful years.
Thank you, from the bottom of our hearts, for everything.

It is with a heavy heart that we announce the closure of the Nothing Down organization. After much careful thought and consideration, we have made the difficult decision to bring this chapter to a close.
Since our founding in 2016, we have achieved so much together—making a meaningful impact in the Down syndrome community and connecting with incredible individuals along the way. We are immensely proud of the work we've done and deeply grateful for the opportunity to have been part of such a positive and supportive network.
We would like to extend our sincerest gratitude to every donor, participant, volunteer, and supporter who helped bring Nothing Down to life. Your contributions have been invaluable, and none of our accomplishments would have been possible without you.
Though our organization is closing, Nothing Down's Facebook page will remain where new and expectant parents can find hope and inspiration from our past projects and awareness content. We are so grateful for all the wonderful years.
Thank you, from the bottom of our hearts, for everything.